In March I took Kennedy into her pediatrician because we felt she wasn't doing very well with holding her head up. We tried not to compare her to other kids her age (and there are quite a few friends with babies within 2 weeks of her) and just figured she was on the later end of the "normal" range on milestones. Her ped referred us to a neurologist and said she had hypotonia (low muscle tone). We met with neuro doc at the beginning of April and he said she was just behind and that she didn't have hypotonia. He did order an abdominal xray and ultrasound to rule out a condition that may cause her head bobbing. All of that came back clear so we were told to just see if it got better and come back mid-May. When we went back he diagnosed her with benign head titubations and order physical therapy and said to come back August 31st. He didn't think an MRI was worth the risk (she would have to be put under so she would stay still). Again wait and see. We were beginning to question this wait and see approach that everyone seemed to be taking. She had her PT evaluation on June 2 and we are now going twice a week. At her first real session we asked the therapist how far behind she thought Kennedy was and she told us that in her 15 years experience she would be really surprised if it was just delay. So....we made an appointment with her ped that afternoon and he called neuro again. We got a call that said he would order the MRI even though he didn't think it was necessary. Although we were glad to have an MRI appointment (July 19th) this wasn't really what we had talked to the ped about...he was supposed to get us in with a different neuro doc for a 2nd opinion. Needless to say we weren't real happy with his so on Wednesday we found a different peditrician and we really like her so far. She was able to move up her MRI to June 16th (yes, this Wednesday! YEH!) and sent us to a pediatric eye doctor to check for strabismus (eyes not always aligning). We went there this morning and got a good report! She actually has pseudostrabismus (the false appearance of strabismus). It is caused by the bridge of the nose and they way the skin is around the eyes that gives the appearance that they eyes aren't alligned when they really are fine. She also had her eye dialated to check the muscles and things and all that was fine too! One test down - 2 PT appointments and one more test to go this week. We hope the rest of the week goes as well as today!
Our new peditrician told us that Kennedy is meeting all of her social milestones and she is eating and sleeping fine. The problem is that her neck and trunk muscles are not strong enough so she isn't hitting her motor skills milestones. She does roll over in both directions and reaches/grabs for things and is getting better with the other things. She does okay sitting with assistance and once in awhile can do it on her own, she plays on her side a lot (who knew that was a milestone) and is starting to do better with using her forearms to hold herself up when she is on her tummy. We are very proud of her for the progress she has made in just the last 2 weeks! Oh and she now has her top two teeth coming in!!!
Now that you have the update here are some pictures.
